Introduction
For women and their families in the UK, pregnancy and childbirth should be a positive experience. However this is too often not the case. Maternal health care in the UK is in a state of emergency. Recent reviews and inquiries (1) have highlighted serious concerns about the safety and quality of services.
This 'Atlas of Birth' for the UK sets out to map where the problems lie and to suggest solutions and examples of best practice. It is based on data gathered by a team of researchers across a number of institutions from publically- available sources and illustrated by the words of women – those receiving care and those delivering care – who speak from experience.
The challenges are urgent and many, but this Atlas of Birth shows that poor quality of care and poor health outcomes are not inevitable. They are almost always linked to inequalities – which can and must be tackled. When we map the differences in women's experiences, we show that inequalities are linked to ethnicity and to poverty – and to where women live.
It's wrong that risks are not equally experienced. Probably the starkest statistic that summarises these inequities is that black women are nearly four times as likely to die in childbirth than white women (2). It is a further sad fact that newborn deaths and stillbirths are also linked to ethnicity and poverty.
Underpinning all this is lack of human resources, particularly midwives. But we can see differences even between Health Trusts in recruitment and retention of staff, while even when we do have high quality, safe and personalised care, including essential mental health services, people do not have equal access to them.
This Atlas of Birth sets out to provide the high quality, accessible data which is essential if we are to inform effective responses to inequalities. However the data we need to do this is not always readily available; it is often fragmented, provided by a disparate group of institutions and not disaggregated in the way that we need in order to measure and monitor inequalities.
We aim to change this, and so this online Atlas of Birth provides a platform for bringing together and presenting existing high-quality data on inequalities – and advocating for more and better data so that we can discuss underlying causes and possible responses.
At the heart of our work is a call for clear, reliable, centralised and accessible data on inequalities that can be used for developing policy and services that meet the needs of all women, all babies, whoever they are, wherever they live. Because as the saying goes - if you are not counted, you don’t count.
This website is still very much a work in progress, and we hope to develop it further in collaboration with service users and civil society groups. If you have any comments or ideas please contact Sarah Neal (s.neal@soton.ac.uk).
Dr Sarah Neal, University of Southampton
Brigid McConville, White Ribbon Alliance
Gill Moncrieff, University of Stirling
Lucy Stone, Swansea University
Professor Zoe Matthews, University of Southampton
Dr Jason Sadler, University of Southampton
Professor Soo Downe, University of Central Lancashire (UCLan)
Note: this document uses the terms 'woman' or 'mother' throughout. These should be taken to include people who do not identify as women but are pregnant or have given birth.